{"id":257,"date":"2020-02-26T07:31:25","date_gmt":"2020-02-26T07:31:25","guid":{"rendered":"http:\/\/articles.sightednon24.org\/?p=257"},"modified":"2020-02-26T07:38:28","modified_gmt":"2020-02-26T07:38:28","slug":"why-we-advocate-for-sighted-non-24-on-rare-disease-day","status":"publish","type":"post","link":"https:\/\/articles.sightednon24.org\/index.php\/2020\/02\/26\/why-we-advocate-for-sighted-non-24-on-rare-disease-day\/","title":{"rendered":"Why we advocate for Sighted Non-24 on Rare Disease Day"},"content":{"rendered":"\n<figure class=\"wp-block-image alignwide size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"683\" src=\"http:\/\/articles.sightednon24.org\/wp-content\/uploads\/2020\/02\/rdd2020-poster-1200x800h-1-1024x683.jpg\" alt=\"\" class=\"wp-image-264\" srcset=\"https:\/\/articles.sightednon24.org\/wp-content\/uploads\/2020\/02\/rdd2020-poster-1200x800h-1-1024x683.jpg 1024w, https:\/\/articles.sightednon24.org\/wp-content\/uploads\/2020\/02\/rdd2020-poster-1200x800h-1-300x200.jpg 300w, https:\/\/articles.sightednon24.org\/wp-content\/uploads\/2020\/02\/rdd2020-poster-1200x800h-1-768x512.jpg 768w, https:\/\/articles.sightednon24.org\/wp-content\/uploads\/2020\/02\/rdd2020-poster-1200x800h-1-1536x1024.jpg 1536w, https:\/\/articles.sightednon24.org\/wp-content\/uploads\/2020\/02\/rdd2020-poster-1200x800h-1-769x513.jpg 769w, https:\/\/articles.sightednon24.org\/wp-content\/uploads\/2020\/02\/rdd2020-poster-1200x800h-1.jpg 1701w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n<p><em><a href=\"https:\/\/www.rarediseaseday.org\/\">Rare Disease Day<\/a> is February 29th on Leap Years and February 28th other years.<\/em><\/p>\n<p>Why do we advocate for Sighted Non-24 on Rare Disease Day?<\/p>\n<p>Non-24 is classified as a rare disease and is featured on the <a href=\"https:\/\/rarediseases.org\/rare-diseases\/non-24-hour-sleep-wake-disorder\/\">National Organization for Rare Disorders<\/a> website; they claim, \u201cNon-24 occurs in 55-70% of completely blind people, but also occurs in an unknown number of sighted people.\u201d We do not know how many Sighted Non-24 patients exist because there is so little research. Doctors, too, may often fail to recognize that a sighted person can have Non-24.<\/p>\n<p>Non-24 is typically due to a completely blind person\u2019s inability to sense light. Without light cues, the Circadian Rhythm is thrown off its normal 24-hour track. In most cases, a person\u2019s sleep shifts forward around the clock.<\/p>\n<p>But in Sighted Non-24, the causes are much more varied and unclear.<br>We want sleep doctors, neurologists, medical professionals, and people around the world to recognize that sighted people can have Non-24, too.<br>Simply because a disease is rare does not mean it doesn\u2019t exist. According to <a href=\"https:\/\/globalgenes.org\/2009\/02\/27\/rare-disease-facts-and-figures\/\">Global Genes<\/a>, One in 10 Americans is living with a rare disease.<\/p>\n<p><strong>What are some of the causes of Sighted Non-24?<\/strong><br>Among others and unknown causes, patients report their Sighted Non-24 is caused by one or more of the following:<\/p>\n<ul>\n<li>It may be a <strong>neurological<\/strong> disorder with abnormal functioning of the suprachiasmatic nucleus (SCN) in the hypothalamus.<\/li>\n<li>It could be due to the retina being <strong>too sensitive<\/strong> or <strong>not sensitive enough<\/strong> to <strong>light signals<\/strong>. This may relate to the eye itself or neurological processes.<\/li>\n<li>Sometimes, Delayed Sleep Phase Disorder can develop into Non-24. This is often <strong>due to chronotherapy<\/strong>. Chronotherapy is a \u201ctreatment\u201d proscribed by patients with DSPD to try and slowly readjust their sleeping habits. Doctors ask patients to force their sleep to a cycle their Circadian Rhythm is not used to and this can create an elongated Circadian Rhythm leading to Non-24.<\/li>\n<li>A <strong>pituitary adenoma<\/strong> (tumor) can cause Non-24. This is a small benign tumor that disrupts the typical flow of chemicals that control hormones, particularly those related to sleep like melatonin.<\/li>\n<li>There may also be <strong>genetic factors<\/strong> at play. Researchers are currently studying the genetic involvement that may be present in Sighted Non-24. Dr. Alina Patke and her associates at The Rockefeller University are among those studying how genetics are involved in Circadian Rhythms.<\/li>\n<li>There are likely <strong>other unknown causes<\/strong>. The Circadian Rhythm is complex and governed by many factors, including <strong>hormonal and neurological<\/strong>. We hope raising awareness will inspire researchers to continue searching.<\/li>\n<\/ul>\n<p><strong>We advocate for Sighted Non-24 because we need more research, doctors who recognize us, and more treatment options for all the known and unknown causes of Sighted Non-24.<\/strong><\/p>","protected":false},"excerpt":{"rendered":"<p>Sighted Non-24 is a rare disorder of the Circadian Rhythm. There is little research or mainstream understanding of Non-24. <\/p>\n","protected":false},"author":4,"featured_media":263,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_mi_skip_tracking":false,"footnotes":""},"categories":[6],"tags":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v19.4 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Why we advocate for Sighted Non-24 on Rare Disease Day - Sighted Non-24<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/articles.sightednon24.org\/index.php\/2020\/02\/26\/why-we-advocate-for-sighted-non-24-on-rare-disease-day\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Why we advocate for Sighted Non-24 on Rare Disease Day - Sighted Non-24\" \/>\n<meta property=\"og:description\" content=\"Sighted Non-24 is a rare disorder of the Circadian Rhythm. There is little research or mainstream understanding of Non-24.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/articles.sightednon24.org\/index.php\/2020\/02\/26\/why-we-advocate-for-sighted-non-24-on-rare-disease-day\/\" \/>\n<meta property=\"og:site_name\" content=\"Sighted Non-24\" \/>\n<meta property=\"article:published_time\" content=\"2020-02-26T07:31:25+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2020-02-26T07:38:28+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/articles.sightednon24.org\/wp-content\/uploads\/2020\/02\/rdd-logo.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"600\" \/>\n\t<meta property=\"og:image:height\" content=\"573\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Liberty R\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Liberty R\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Organization\",\"@id\":\"https:\/\/articles.sightednon24.org\/#organization\",\"name\":\"Sighted Non-24\",\"url\":\"https:\/\/articles.sightednon24.org\/\",\"sameAs\":[],\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/articles.sightednon24.org\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/articles.sightednon24.org\/wp-content\/uploads\/2024\/02\/SIGHTED-Copy.png\",\"contentUrl\":\"https:\/\/articles.sightednon24.org\/wp-content\/uploads\/2024\/02\/SIGHTED-Copy.png\",\"width\":3000,\"height\":1509,\"caption\":\"Sighted Non-24\"},\"image\":{\"@id\":\"https:\/\/articles.sightednon24.org\/#\/schema\/logo\/image\/\"}},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/articles.sightednon24.org\/#website\",\"url\":\"https:\/\/articles.sightednon24.org\/\",\"name\":\"Sighted Non-24\",\"description\":\"CIRCADIAN RHYTHM DISORDER\",\"publisher\":{\"@id\":\"https:\/\/articles.sightednon24.org\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/articles.sightednon24.org\/?s={search_term_string}\"},\"query-input\":\"required name=search_term_string\"}],\"inLanguage\":\"en-US\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/articles.sightednon24.org\/index.php\/2020\/02\/26\/why-we-advocate-for-sighted-non-24-on-rare-disease-day\/\",\"url\":\"https:\/\/articles.sightednon24.org\/index.php\/2020\/02\/26\/why-we-advocate-for-sighted-non-24-on-rare-disease-day\/\",\"name\":\"Why we advocate for Sighted Non-24 on Rare Disease Day - 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