{"id":272,"date":"2020-06-07T14:30:09","date_gmt":"2020-06-07T14:30:09","guid":{"rendered":"http:\/\/articles.sightednon24.org\/?p=272"},"modified":"2020-06-07T14:52:10","modified_gmt":"2020-06-07T14:52:10","slug":"4-easy-ways-to-raise-awareness-for-sighted-non-24","status":"publish","type":"post","link":"https:\/\/articles.sightednon24.org\/index.php\/2020\/06\/07\/4-easy-ways-to-raise-awareness-for-sighted-non-24\/","title":{"rendered":"4 Easy Ways to Raise Awareness for Sighted Non-24"},"content":{"rendered":"

Special thanks to Andrew Cowen for contributing to this article.<\/em><\/span><\/p>\n

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Sighted Non-24 Sleep-Wake Disorder isn’t well known, even by doctors. Raising awareness is how we will improve the diagnosis and treatment of Non-24. Currently, those who know about Non-24 may not realize sighted people can develop it. This may be the only disorder where people discriminated against because they can see<\/em>. Sleep disorders are notoriously difficult for people to empathize with…<\/p>\n

Even our friends and doctors may unintentionally gaslight us<\/a> by saying things like, “Yeah, I have a hard time falling asleep sometimes, too.” But Non-24 isn’t just the inability to fall asleep sometimes. It’s a complete deviation in a normal rhythm that is deeply systemic and difficult to manage.<\/strong><\/p>\n

So, here’s what we can do to help raise awareness for this rare and incredibly difficult condition:<\/p>\n

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Call Vanda<\/span><\/h2>\n

Call Vanda Pharmaceuticals and ask them to be vision-inclusive in their advertising for Hetlioz<\/strong>. Simply let them know there are sighted people with Non-24 and that people like us deserve representation, too.<\/p>\n

Only featuring blind people in their advertising makes it difficult for sighted patients to get a prescription for Hetlioz. Doctors watch ads, too, and if they get the impression Non-24 only occurs in blind people, sighted patients my struggle to get diagnosed.<\/p>\n

Call them 24\/7 at: 1-855-856-2424  <\/strong><\/p>\n

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Contact Local News<\/span><\/h2>\n

Contacting your local news can allow you to highlight the oddness, rarity, and difficulty of Non-24.<\/strong> This option is best for people who don’t mind being open about having Non-24 as the news may want to interview you. This is especially important around November 24th for Non-24 Day or Rare Disease Day (February 28th\/29th).<\/p>\n

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Get Featured on This Site<\/span><\/h2>\n

Send us your story.<\/strong> We want to hear about how you (or your loved one) developed Non-24, how you were diagnosed, or how Non-24 affects your life.<\/p>\n

We also accept submissions for blog posts, short stories, poems, artwork, and more. Help us show the world what it\u2019s like to have Non-24.<\/p>\n

E-mail us at 11sightednon24@gmail.com<\/strong><\/p>\n

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Send Postcards<\/span><\/h2>\n

Send postcards to doctors, neurologists, and sleep clinics<\/strong>. We have several different pre-designed post cards<\/a>. All you have to do is print, stamp, and send them. We recommend looking up addresses for your local doctors. Using card stock or having these printed at a local printer is best. If you don’t have a local printer, Vistaprint<\/a> is a good company to use.<\/p>\n\n\n